Disclaimer - much whining ahead. Read at your own risk.
This week has been a struggle. I want to bask in the greatness that was our vacation, but I find myself all tunnel-visioned on the small difficulties throughout. Those small things all centered around James, and culminated with the Wedding Which I Was Barely Able To Attend. Add on the difficulty of starting preschool the day after returning home from vacation (and we drove all night to get here) and I'm having a tough, emotionally wrought time of it all. AND to top it all off, I feel GUILTY for feeling this way.
Suffice it to say, I am a mess.
Up until vacation, I was in a lot of denial about what James is dealing with. Sure, I thought, they're calling him "on the Autism spectrum," but I don't really think that he is. But if that's how they need to label him to get him help, I'm cool with that. Even though I don't think that's what it is.
We left, and he did great on the trip down. He did great that first day at the Magic Kingdom. Sure, he had a tough go on the monorail, but he got used to it quickly. He warmed up to the characters at dinner that night, going so far as to give Minnie Mouse a huge hug (the boy had a serious Minnie crush).
Monday, we took a rest day, since it was seriously cold outside. We managed naps, and some recharging, and some playtime.
Tuesday we did Magic Kingdom from 8 until 10:30 that night. The girls had breakfast with the Princesses and we basically went the WHOLE DAY. James did great. Not a fan of rides, but he went on the People Mover and Pirates of the Caribbean without complaint. He whined through a couple others I shoved at him, and he sat most out by John and I tag teaming. He passed out during the parade of lights, but was basically (except for eating, but that's not unusual) a super-star all day.
Wednesday we did Epcot. We started late so everyone could sleep in a bit, and I'm not sure if that made it better or worse. He was pissed off from the get-go, and sat out of every ride (except Nemo, which he SCREAMED through). He still tolerated the running around of the day, but was completely done with all rides.
The ride phobia continued into Thursday when we hit up Hollywood Studios. I took him into Playhouse Disney (which he watches almost daily) thinking he'd love it and he screamed and thrashed until John took him out. Repeat for the Fantasia light show. Lost his mind. Kind of sensory overload for him. We had to take him out of that one too.
By the time we hit St. Pete beach, everyone was verging on cranky. Not surprising at all. James lasted about an hour into rehearsal dinner, which was about what I expected, and we had a great time at the beach on New Year's morning. When it came time for the wedding though, James was having none of it. He screamed (and for the record, James has never cried or whined quietly, he full on scary movie screams with full body thrashing. it's very intense.) until I took him out (it hadn't yet begun - he WOULD NOT sit down). So I had to leave my kids with my friend and missed the entire ceremony. I cried. It was heartbreaking for me, on so many levels. I managed to find a spot where I could see it, even if I couldn't hear it, but I was still so sad. Sad for me. Sad for James. John felt so bad for me, but couldn't help (he was a groomsman). Cue the reception, where James was fine during dinner, but as soon as the music started, he needed to get out. so I sat outside the ballroom doors for the entire reception. My beautiful daughter took over so I could have one dance with John, but that's all I got.
Coming home, I dreaded school, but James was really excited about it. I was glad to have John there for the first drop off, which was predictably difficult. I cried again (seriously - I need to stop!) until John told me, "There's no crying in Home Depot!" It has gotten progressively better, until this morning, where I Lost My Shit. Mostly because he did. But again, we made it there, and looking back on it, it was hard, but no harder than I could have expected it would be.
I happened upon
a Diary of a Mom sometime back. Jess is the wife of one of my Daily Mile friends,
Luau, and writes eloquently about life with an autistic child and autism advocacy. Yesterday,
this post had me sobbing (not surprising lately, is it?). I swear I could almost have written it. It snapped me out of my denial and into my reality. And now I'm not sure what to do with all of that.
So now what? I'm not sure. But if you're still reading, thanks for listening. It helps me just to spew all of this at you. Maybe I'll figure it out tomorrow on my run...